Several people have asked me about my disorder (Dysautonomia....POTS) and where they can see the episode of Mystery Diagnosis that talks about it. I found the episode on youtube and below are the links. There are many more videos that shows how dysautonomia affects different people on youtube if you search for key words and also on the right hand side of the links below under related videos. I'm glad that finally this disorder is being brought out to the public so people can know just what we go through and that its not just in our heads.
Part One:
http://www.youtube.com/watch?v=NN3PB6N6oGY&feature=related
Part Two:
http://www.youtube.com/watch?v=I40-r3RpFjs&feature=related
Part Three:
http://www.youtube.com/watch?v=PHydjGdg4XQ&feature=related
Here is another video that I saved that talks about herbal supplements you can take to help with the symptoms which was new to me:
http://www.youtube.com/watch?v=4LFintYa09E&feature=fvw
Here are two websites with information about dysautonomia:
http://www.potsplace.com/
http://www.ndrf.org/
5 comments:
I just saw the MD show on it by accident and that's why I asked. Honestly? Scared the shit out of me. I didn't know what version you had nor how serious you being pregnant was with this condition. Remind me to beat your ass after Elmer comes for putting yourself at risk!
(HUGS)
Well I asked my specialist if it was safe for me to have kids when I first started going to him and he said its perfectly safe. I just watched that show again and saw what happened to her first child...(totally didn't remember that part) but my specialist never said anything about the blood flow not getting to the baby. I know when it starts to come on and I take lots of breaks when I clean or do anything that requires lots of energy. No worries!
Are they still talking about inducing/c-sectioning you early?
He said that they are gonna plan on a vaginal birth unless other signs say so. He did say that right when I come into the hospital they are going to give me an epidural because my pain gets way outta control with my dysautonomia.
Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!
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